I thought I would get in early and reflect on the year, and
what a year it has been!
As I always say, most people would consider that my year has
been the epitome of shitty, but gosh there was a lot of joy shoved in there.
It was January 6 when we found out that my treatment was not
working and the cancer had spread to most of my major organs. And it was on
this date that I asked my doctor how long I had to live, and the response was
only months. We were told to go and do what we had to do and to live… you know
its not good when your doctor gives you that kind of freedom!
With this news, we entered 2014 with the need to make
memories.
My immediate family – my parents, sisters and their
husbands, nieces and nephews, and Serge – went on a holiday to Hamilton Island.
It was great week spent with the family, but emotions were high and the news
still raw. As we moved further into 2014 we slowly established a routine, we
all began to work out our own coping mechanisms to deal with my prognosis.
A wish for a 'happy however long' |
Two days after our family holiday, Serge and I departed on
our pre wedding honeymoon. We needed the pre wedding honeymoon because we
didn’t know if I would be well enough after the wedding to make it overseas. We
spent two luxurious weeks in Bali. This holiday was just what I needed. Serge
has the ability to make me feel ‘normal’. Serge doesn’t see me as Emma with
cancer, I am just Emma. Our time away from the craziness that our lives had become
was refreshing. Cancer was rarely thought or spoken of. There was one moment
when we had a teary moment and the reality of our upcoming wedding was at the
forefront of our mind – it was when we went on a romantic dinner at a beautiful
temple and we let a lantern off in to the nights sky with a wish of a ‘happy
however long’. Serge and I can’t wish for a long future growing old together
and having a family, but we can hope that the time we spend together is happy
and full of love.
My bridesmaids that made planning our wedding so much fun! |
March 16 saw Serge and I wed. It was an amazing day, as well
as lead up to the event. I had six bridesmaids (yes, six!) – my two sisters and
my four best friends. Originally I planned to just have my sisters stand next
to me on the day, because, really, who wants six bridesmaids? But, I am so glad
that I included my best friends on this special day. We all had such a sad few
months with my health and we needed something that was positive to focus on.
From choosing dresses, to the wild hens night, and of course the wedding day,
there were so many special memories that will stay with us all forever.
Our wonderful wedding! |
Our wedding day was everything we could have hoped for. We
chose ‘Here comes the sun’ as our wedding song (slightly ironic choice
considering the whole melanoma, but didn’t think of that) because it speaks of
the light that comes from a period sadness. Serge is my light on this journey.
My two wishes when we found out that I only had months live
were to make it to our wedding day (tick!) and to meet my sister’s first baby
(tick!). Not only did I get to meet Harry, I have been able to watch him grow
into a cheeky and very chubby 7 month old. Now to planning his first birthday!
One of the biggest achievements of 2014 has been launching
this blog. Dear Melanoma was officially launched on June 8 this year. Who would
have thought in 6 months that the blog has had 80 000 views and has over 2000
followers on Facebook. The launch of the blog raised $12 000 for Melanoma
Institute Australia, which was added to the $23 000 fundraised during the
Melanoma March.
The launch of Dear Melanoma |
I started this blog first and foremost to be a coping mechanism
for myself, but to also document a very very honest account of my life with
cancer. Dear Melanoma has well and truly exceeded my expectations. I get so
much joy from interacting with people on the Facebook page. Every time someone
contacts me to tell me that they had their skin checked after reading my story,
it gives me the energy to keep on going. I thank every one for being part of
this journey.
2014 continued to surprise me. As I continued to respond to
the clinical trial, I started to let down my walls and relax. Serge and I went
to the USA for 3 weeks, which was a very big decision considering I can’t get
insurance. As my oncologist told me, ‘what is the point of responding to
treatment if you can’t go and live life’? What a wise woman she is!
Our beautiful Ralph. |
Serge and I welcomed a puppy, Ralph. It was a big decision
because we had to think about what would happen if I passed away, would Serge
be able to look after him. However, we ditched that thinking and got Ralph
anyway. He makes me wake up in the morning…. if I don’t I will find wee
everywhere! He gives me purpose. He is a very special little puppy.
Christmas was spent with my wonderful family. Although I was
apprehensive, it was such a fun day, especially when it was spent with my
nieces and nephews. Every moment spent as a family needs to be treasured and
memories made.
As we launch into 2015, I am not going to set New Years
resolutions. I am not going to wish that my cancer be cured. I am not going to
wish to be here for New Years. I am not going to put any pressure on myself.
Instead, I am going to remind myself of my quasi-bucket list. I am going to
remember all the little things that bring joy to my everyday life. I am going
to embrace each and every day.
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Thank you so much for your comment. I really appreciate you taking the time to connect. Emma x