One of my biggest internal struggles on my cancer journey has been with the sometimes exciting, but largely depressing, notion of a bucket list.
My choosing to have, or not to have, a bucket list would change every few weeks. But I realise now, the weeks when I was pro-bucket list I was convincing myself that ‘living in the moment’ and ‘making the most of life’ were phrases that instilled purpose and happiness in a time of uncertainty and sadness. However, when thinking about what I would write on my bucket list, I did not feel like I had purpose and I definitely did not feel happy. Instead, I felt defeated, upset, and I felt like I was dying.
For me, a bucket list was a reminder of what I could not have.
When I sat down and thought about what I wanted to achieve in life as a woman in my early 20s, I could add little to my bucket list if I was hoping for it to be realistic.
My dream has always been to be a wife, but most importantly to be a mum. I remember when I was in East Timor travelling with a group of young people, we were discussing what we wanted to be when we ‘grow-up’. As we went around the circle I heard of their amazing career aspirations and I was nervous. My dream was nothing like any of theirs. My dream was to be a Mum and my career would come second to this.
My dream of being a mother has slipped away. Unless a miracle was to happen, I will never be a mother. Even if that miracle happened and I went into remission, Serge and I would be faced with making a decision to have a child knowing that the chances of my cancer coming back would be real. We would have to discuss the reality of Serge being a single parent. I couldn’t add my biggest dream of being a mum to this bucket list, so I moved onto thinking about my other goals for the future.
|Making tortillas in Guatemala.|
My year working in East Timor confirmed my career direction. I wanted to go back to University and study to become an Occupational Therapist. I had been accepted into a postgraduate masters and had begun prerequisite study when I was diagnosed as Stage 3. When the diagnosis changed, my chances of being well enough to do full time study, let alone be alive to graduate were slim. So out went that dream.
So my big goals in life were out the window, hence my first reason to be angry at the idea of a bucket list.
I moved onto my second plan of attack. I thought if I didn’t have children and didn’t have the responsibility of a career, what would I be doing? Without hesitation, I would be continuing my love affair with travelling. Serge and I could see the world together. I could easily write a bucket list of all the places in the world I wanted to see. I would take Serge to the places I have called home, Guatemala and East Timor. We would eat our way through Central and South America. We would island hop through the pacific (of course, remembering to slip, slop and slap!). We would visit Serge’s extended family that are spread out throughout Bosnia, Serbia and Croatia. There would not be a corner of the world excluded from my bucket list.
|My colleagues in East Timor|
But once again, I was left defeated. The majority of places that made up my list were strongly discouraged by my doctors as holiday destinations for a person with advanced cancer, but moreover, a person with a little mystery mass that had called my brain home. I was given suggestions of countries that would be safe for me to travel to, as well as countries where we would not be faced with crazy medical fees if something were to happen to me when I was there. But I did not like the idea of having a list that was limited. If a bucket list was to play such an important role in my life, I didn’t want to write it with restrictions.
|Enjoying 'fish on a stick' in East Timor|
My first two attempts at a bucket list failed. My social workers listened to me go back and forth about the worth of a bucket list. You would think, surely, that I would be able to put a list of things together that would brighten my last however long and create wonderful memories. So I went to trusty google (I never learn!) for some inspiration. There were lots of exciting things to fill a list with – swimming with dolphins, learn to surf, learn a new language, take up dancing etc etc. However, at the end of the day, I realised that my biff with a bucket list was not just because I couldn’t fill it with all the goals I wished for in my life, but it was because at the end of the day a bucket list is something I was to write because I am dying.
It is at this point that I placed a bucket list at the very bottom of my to-do list.
A bucket list may mean something different as I move further into my cancer journey, but for now, I am going to try a different kind of list. What makes this list different is that it isn’t about making sure I go out and create memories before I die. Instead, it is about bringing joy to my everyday life.
I am going to share with you my first three items on my list:
- · To always have beautiful flowers in our home
- · To always order a pavlova if it is on the menu at a restaurant (ignore all concerns for my waistline)
- · To have a ‘fold-down’ (all cushions removed from my bed and blankets turned down) by Serge every night. (I don’t know if Serge would approve of this one, but it is one of my favourite things!)
For now, this list will be my answer to a bucket list.