As long as its not cancer, I can manage...

I never thought that I would so casually say, ‘as long as its not cancer, I can manage’ or ‘it is better than the alternative – dying’. However, this has become my reality. It has become my mantra this week.

As those that follow the Dear Melanoma Facebook Page would know, I have had a bit of a rough trot emotionally. However, this last week I have had some scans and tests that fall outside my normal scheduled trial scans. Enter stress, fear, worry and absolute panic mode.

The last month I have been Ms Twitchy McTwitch. I randomly developed a twitch that is the epitome of annoying. Most (lets be honest, pretty much everyone) that I mentioned it to felt the need to share their story of how they often have twitches and it is due to stress or fatigue. I am very well aware that this may be the case as it is not the first twitch that I have had in my almost 24 years, but what sets my special twitch apart is the fact that I have CANCER – CANCER IN MY BRAIN. For me, it is not quite so easy to dismiss it as just fatigue or stress, but instead I fear that this may be an indicator that something is happening in that brain of mine or potentially could be a sign that the cancer has spread to my spinal chord.

Through the Looking Glass - the beginning of a very impressive raffle/auction list...

Oh my giddy aunt, we only have 4 weeks to dust off our dancing shoes and find a frock for Through the Looking Glass! For those of you that may have been living under a rock, I am hosting a fundraiser, a cocktail event in Brisbane, to raise money for Melanoma Institute Australia.

Since being diagnosed with Stage 4 melanoma, I have dedicated the time I have left to raising awareness of melanoma, but also raising much needed money for research. Selfishly, I want options. I want to know that once this treatment stops working that I can jump to another clinical trial. This is why I want to raise money for research.

I have been overwhelmed by the support that has been shown for the event. Tonight I want to share with you all the amazing raffle prizes/auction items that have kindly been donated to Through the Looking Glass. I hope this makes you even more excited about the event!

Yay for stylish swimwear that is sun safe!

About a month ago on the Dear Melanoma Facebook page I spoke about my mission to find a great swim top. Although I avoid the most dangerous parts of the day, try and swim in pools with shade and wear sunscreen, it is no longer sufficient.

As a side effect of the clinical trial I am on, I am losing the pigment in my hair and skin. At first it was only my hair – my eyebrows started to go white and then the front segment of my hairline. Thank goodness for hair dye and an amazing hairdresser! But, unfortunately, over the last few months the pigment in my skin is slowly disappearing leaving me with some areas of patchy skin and zero protection. I can get burnt walking short distances or even out for a few minutes at the clothesline. What I didn’t know was that sunscreen would provide zero protection to my skin. Once there is no pigment, sunscreen provides no protection.  For example 50+ sunscreen gives 50 times your own skins ability to protect itself from the sun.  Therefore, I have no protection.